Keep Pushing, Keep Praying, Keep Advocating.

Uncategorized Jul 18, 2021

 

Being a mom is hard y'all. But being the mom to a child(ren) with special needs is the hardest Stinking job I've ever had...and trust me I've had some tough jobs that some days left me with absolute heartbreak.

I think as parents all we want for our children is to grow up and be good people, have a great education, treat people how they would want to be treated, and follow their dreams, but that road isn't always as navigable as we hoped it would be.

Advocating and doing what is right for your children is so undeniably stressful. Making a decision that will affect him or her for the rest of their life is painstaking as a parent. All the what-ifs, the how's, the changes...will it lead to more stress and anxiety for a child who already suffers and works day in and out to overcome it?

I wish I had the answers or a crystal ball that would help me predict the future, but all I can do is to follow my heart and trust in the plan God has before me. He knew long before I did that I was meant to be a mama to these children, children that would need me to be the strongest advocate I could be and to do my very best for them in every situation we face.

So, mama, I see you. I get it.

We are not only our kids’ advocates we are their voice.

We speak their language and understand them when others don’t.

We drive them to and from therapy appointments every week.

We sit through meetings, therapy sessions, doctor appointments, and more. 

We wonder we pray, we hope for the best possible future for our child.

We ache with every ounce of our being because we know this is hard, it’s scary, it’s frustrating, overwhelming, and draining. 

This journey is hard. It’s filled with joy and sadness, fear and hope, laughter and tears, frustration and happiness. 

I know you probably feel alone, but know that you aren’t.

It does get better, it’s getting a little easier, and sometimes it gets hard again, but know this is a marathon and not a sprint. 

It wasn’t that long ago that I dreaded the simplest of things, birthday parties, trick or treating, even a simple date night gave me anxiety. 

Now, these days we do not let fear or judgment stop us. We (especially me) have learned to embrace the opportunity to share our journey and educate others. 

It will take hard work. It will take an amazing therapist. It will take you. 

It will get easier, it won’t be perfect. There will still be struggles, but you are capable of amazing things. 

My child who could barely speak and be understood just a few years ago is now talking our ears off. He might say “hey mama” 100x a day, and I get tempted to tell him to be quiet...but those “hey mamas” are usually followed with a quick “I love you” and then I remember how long I prayed to hear his voice. 

So dear mama, don’t lose hope. Keep pushing, keep praying, keep advocating. Your day is coming and I promise it is worth the wait. 

Love, A fellow mama who understands ðŸ’™

Guest post by: Jackie Commella Werts, Mama of two amazingly special  kiddos, teacher, and advocate 

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